Notes from the Desk of Hemophiliac

Looking Back at Myself: Finding Who I Am with Haemophilia It's funny, isn't it? When you live with something like haemophilia, it doesn't just affect your body; it really gets into your head and heart too. For so long, I felt like my identity was just... 'the kid with haemophilia.' It was like looking in a mirror and only seeing the condition, not the person behind it. And honestly, that can be a really tough place to be. I remember feeling so different from my friends. They'd be running around, playing sports, and I'd be sitting on the sidelines, worried about a bleed or just feeling too tired. It made me question so much about myself. Am I strong enough? Am I capable? Will anyone ever see past this thing I have? Those doubts can really eat at you, you know? But over time, something started to shift. It wasn't a sudden, dramatic change, more like a slow dawning. I began to realise that haemophilia is a part of my story, but it's not the *whole...

  It's funny, you know? When people hear 'haemophilia,' they usually just think of bleeding. Like, a lot of bleeding. And yeah, that's a huge part of it. I've had my fair share of bleeds, from the 'oops, I bumped into a table' kind to the 'uh oh, this is a big one' kind. But what most people don't see, what they don't get, is everything else that comes with it. It's like living with a shadow that's always there. It's the constant worry in the back of your mind. 'What if I fall?' 'What if I get hurt?' 'What if I have a bleed and I'm all alone?' It's the fear that a simple, everyday thing could turn into a major medical emergency. It's the anxiety that never really goes away. And then there's the guilt. Oh, the guilt. I've felt it so many times. The guilt of holding my family back from doing things. The guilt of my parents having to worry about me all the time. The guilt of feeling lik...

What is pain? Pain is a sensation which is uncomfortable and makes us feel miserable comparing the conditions of us with others. It is a unique condition which provides unique perspectives on life. Pain makes us, break us, remould us and help us to rebound ourselves if taken sensibly and intuitively. The suffering which is brought by the pain is the indication: it is a pure clear indication: “I will make you or break you, let me know how I will treat you.” Pain also works as a cleaner or intensifier. It is a catalyst which makes things very clear and distils us. It is very painful that we are suffering from the years from the various types of pains but never understand how it will help.  Maker or Breaker:  There are two approaches to handle these pains: either we endure them and curse the luck, or we understand the significance of occurrences of the patterns and make meanings out of them. Many people drag their life throughout in pain and curse their fate and desti...

Hello Readers, I am Dr Bhavin Chauhan. Though the professional identity is of mine is teaching (more precisely teaching the lives for better), the personal identity of mine is somewhat complicated. To voice my identity, I am starting this writing. Besides being a normal Asst. Professor, an avid reader, a twisted writer and De-motivational Speaker, I possess a unique identity. I am a Hemophiliac. The term might be rhymed with maniac but it has a completely different connotation. When someone has Hemophilia, the society is looking like a maniac to him (Here, I am using the terms he/him/his because Hemophilia is the disease for male-only, rarely any female found till now. YET they are the salient and silent sufferers as sisters, mothers, wives and friends.)   The objectives of this blog are:  To motivate my fellow Hemophiliac brothers and their families as they are constantly battling inside with their bodies and outside with the society as they (often rather most of the ...