More Than a Bleed: The Unseen Emotional Landscape of Hemophilia
It's funny, you know? When people hear 'haemophilia,' they usually just think of bleeding. Like, a lot of bleeding. And yeah, that's a huge part of it. I've had my fair share of bleeds, from the 'oops, I bumped into a table' kind to the 'uh oh, this is a big one' kind. But what most people don't see, what they don't get, is everything else that comes with it. It's like living with a shadow that's always there. It's the constant worry in the back of your mind. 'What if I fall?' 'What if I get hurt?' 'What if I have a bleed and I'm all alone?' It's the fear that a simple, everyday thing could turn into a major medical emergency. It's the anxiety that never really goes away. And then there's the guilt. Oh, the guilt. I've felt it so many times. The guilt of holding my family back from doing things. The guilt of my parents having to worry about me all the time. The guilt of feeling lik...