Notes from the Desk of Hemophiliac

You know what nobody talks about enough? The stuff going on inside our heads when we're dealing with hemophilia. Everyone sees the physical part - the bleeds, the pain, the endless doctor visits. But what about the mental battles we fight every single day? The depression, the anxiety, the feeling like you're drowning and nobody even notices because you look "fine" on the outside? I'm tired of keeping this quiet. We need to talk about it. Here's the thing - we've gotten really good at hiding how we really feel. We smile, we say we're okay, we push through. But inside? It's a different story. Someone once said it perfectly: "The most deceiving part of having a bleeding disorder is that we could appear fine on the outside but could be battling so much on the inside." Man, doesn't that hit home? And it's not just a few of us struggling. More than half of young adults with hemophilia deal with stress, insomnia, depression, or anx...

You know, living with haemophilia, it's like being constantly at sea. One minute, things are calm, and the next, a huge wave of worry just crashes over you. It's not just about the bleeds, is it? It's about the constant, nagging fear that something *could* happen, at any moment. That's the real ocean of worry I live in. I remember when I was younger, I'd try to push those worries away. I'd tell myself, "Don't think about it, just live your life!" But it's hard, isn't it? Every bump, every bruise, every little ache sends my mind racing. Is this a bleed? Is it going to be a bad one? Will I end up in the ER again? It's exhausting, honestly. And it's not just my own health I worry about. I see my family, my parents, and my partner, and I know they worry too. Sometimes I feel like I'm a burden, even though I know they'd never say that. We're all in this together, and their worry just adds to mine. It's a heavy weight ...