Notes from the Desk of Hemophiliac

You know, living with hemophilia, it's like you're constantly carrying this invisible weight. It's the weight of "what if." What if I bump into something? What if I get a bleed that won't stop? What if I can't be there for my family because of this? It's a heavy burden, this fear of the unknown, and honestly, it can feel overwhelming sometimes. I remember when I was younger, every bruise, every little scrape, felt like the end of the world. My parents, bless their hearts, tried their best to protect me, but you can't bubble-wrap a kid. And as I got older, that fear just… evolved. It wasn't just about the physical pain anymore; it was about missing out. Missing school trips, sports, even just hanging out with friends because I was worried about a bleed. It made me feel so isolated, like I was living life on the sidelines. But here's the thing I've learned: you can't let the "what ifs" win. They're sneaky, those fear...