Notes from the Desk of Hemophiliac

Living with hemophilia isn't just about managing a bleeding disorder. It's about carrying an invisible weight that few people understand: the constant, nagging fear of "what if." What if I bump into something? What if I get a bleed that won't stop? What if I can't be there for my family because of this condition? If you're living with hemophilia or caring for someone who is, you know this burden intimately. The fear of the unknown can feel overwhelming, even paralyzing. But here's what I've learned through my own journey: those fears don't have to win. The Evolution of Fear: From Childhood to Adulthood When I was younger, every bruise felt catastrophic. Every scraped knee seemed like the end of the world. My parents did their best to protect me, wrapping me in layers of caution and concern. But you can't bubble-wrap a kid forever, and that protective instinct, while loving, sometimes amplified my own anxieties. As I grew older, the fear evo...